| Archive : The RSI-UK mailinglist |
On Fri, Jan 14, 2000 at 04:33:28AM -0800, Anna Avino wrote:
> dear all
> sorry for the e-mail that caused such controversy but that was what I
> intended to do. (although not offend anyone!) Having posted several messages
> and received no replies from anyone I did begin to get concerned that people
> were just accepting their fate.
>
> I wanted to see if i could stir things up a bit in a bid to get some
> response.
Do bear in mind that many of the subscribers on this list are
suffering from some degree of disability, and enduring very high
levels of stress. It's hardly appropriate to make provocative
remarks with the intention of "stirring things up".
>
> Having been out of work and not entitled to a penny in benefits or financial
> help from anywhere because i was self employed and working in the states
> when mine started, I have to say I am desperate to hear real experiences
> from real sufferers.
You might like to browse through the archives of the list for this.
>
> Info in books etc only goes so far but what I was trying to find out, and
> what the list claims to be is a forum for sufferers sharing solutions that
> have helped them.people they have gone to, exercises that have helped etc,
> because as we all know £40 a visit to check out these people soon adds up to
> the several thousand I have spent fruitlessly already.
Just in case there is any misunderstanding, can I clarify this point.
The list is here to _provide an opportunity_ for people to talk about
their experiences with RSI, if they wish to do so. If they prefer,
they're free to remain silent and simply read what others say.
There is absolutely no duty or expectation for anyone to say anything
if they don't choose to do so.
>
> as you must have seen in my earlier postings, part of my frustration is
> brought about by the fact that my diagnosis keeps being changed between
> whiplash and difuse rsi which scares me because one means I can go back to
> work at some point and the other needs careful consideration before i jump
> back on a computer eight hours a day in a stressful environment and possibly
> cause permanent injury.
Diffuse RSI is notoriously difficult to diagnose. It's what's left
if the doctors can't find any other explanation. But it's not an
either/or situation: you might easily be suffering from whiplash and
also from RSI. Or if it's only whiplash, it could turn out that
you're more vulnerable to injury as a result. I think you're wise
to be cautious about returning to working eight hours a day in a
stressful environment. Have you considered using voice recognition?
A lot of people have found this a great help in enabling them to
get back to work. By using VR, you could perhaps venture back to
working with a keyboard more gradually, till you see what you can
bear.
>
> I find it more helpful to enter a dialogue with a human who has the benefit
> of experience rather than try to see where I fit in from a paragraph in a
> book or a listing which may not be current.
>
> Surely each of us knows something from out current therapists which is up to
> date and which if it helps just one person, is worth sharing?
Can you not see that this sort of comment is likely to make people
feel guilty for not posting? That's _not_ the purpose of the list.
Often people do feel the impulse to let others know about something
they've discovered which helped them, but there's certainly no
obligation on anyone to do so. It's perfectly okay for subscribers
to treat the list as "read only".
>
> To those of you who did reply, many many thanks.it is much appreciated and i
> understand fully what it has cost you because I was unable to use my hands
> AT ALL for anything for eight months.I had to be washed, dressed and fed.
>
> You can be sure that as and when I learn anything I feel may be useful I
> will post it here so everyone has access to it, as I did with the point
> about getting your neck checked even if the problem seems to be just in one
> finger or wrist etc.
>
Good luck in finding something that will help. You might want to
have a look at the FAQ and the website, also to join the RSI
Association (see website for contact details).
Regards,
Ellen
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